Wednesday, December 30, 2015

My Life

While going through old boxes in the back of my closet, I found a lot of shit. Dishes. Clothes. Scrapbooks. Albums. Pictures. Letters. Memories that had been packed away. Mostly forgotten. Not sure what got into me. Why the nostalgia need. Most definitely was a bad idea.

I can be vague here as is my norm. Or I can just be honest. Tell you that seeing those albums was painful. Although I laughed and fake-gagged at the time. I can say that I am over it. It's all the past and doesn't affect me. But that is not the truth. I did flip through those pictures. Glanced at the scrapbooks containing hundreds of letter. Handwritten love letters. Flashing back to another time. A time that was less complicated.

I saw myself. What outsiders saw. Religious. Observant. Following the rules. Whatever you want to call it. I was playing the part. Living the lifestyle.

I know now that it was all a facade. Waiting to crash at my feet. Living in a fantasy land. Surrounded by infatuation. Desire for a future. No understanding of the present. Of the facts in front me. Avoiding reality. All to live in delusion. A dream of what I wanted and not what was.

I gave up myself. I lost who I was. And I did it willingly. I followed a path that I didn't want. To fit in. To please everyone else. But I was not happy. I was controlled. Miserable. I was uncomfortable in my own skin. I wasn't authentic.

And that's not who I am. Who I ever wanted to be. All I ever wanted to be. Unique. To be authentic. What you see is what you get. Not two-faced at all. Honest to a fault.

And now, although a lot has changed. It is not a bad thing. Looking at my face in those pictures, I see a lonely and sad girl. Standing at a distance from those around her.
Lost. Alone. Leading a life that is not her own. Trapped in a life she doesn't desire.

Today I am grateful. I feel lucky that I have myself back. That I am living my life. As I want to live it. And I won't take that freedom for granted. And I won't lie and say that it isn't hard. Doesn't get painful. The loneliness is definitely there under the surface. But I  no longer feel hopeless. Because my happiness and my life do not depend on you or anyone else. It's internal. My choice. My goals. My life.

My life.

Wednesday, December 16, 2015

What Did I Do

What am I supposed to take from that
Is there a lesson somewhere
A punishment
Were you trying to give me a message
A wake up call
Did I need it that day
That minute
Of all places
I had to pass by then
Cross the street
At that very moment
On that specific day
Exact hour
Tell me why
What did I do
Why did I need that
What were you trying to say
Did you want me to think
Pretend there's such a thing
As coincidence
Random chance
There's no such thing
Everything matters
Has a purpose
A reason
So tell me why
Why did you do it
Do you even care
See me
Hear my silent pain
Is that your plan
So blatantly obvious
In my face
On a terrible day
The worst kind

Tell me why

Saturday, December 5, 2015

You Don't Know Me

You think you know me but you don't.

I am a doer
A fighter
A leader
I am motivated
And loyal
I will be there for you

I am weak
A patient
I am in pain
I am scared
I am a failure

I have officially been told that I have a medication overuse headache. So add that to my three other kinds of headaches and we could have a party. Oh wait, it seems my head is already having a party and I wasn't invited. So not only do I have bronchitis. But I also have to stop taking all meds for 5 weeks. Gotta ween myself off my addiction to pain meds. All the while suffering from a terrible withdrawal headache, attached to my migraine and occipital neuralgia. Not to mention my IIH. Which thanks to Hopkins, we have no idea what is going on. I just get to fall apart. And suffer in constant agony. And all the while, I have to function. Go about my regular life. Pretend like there isn't a war zone in my skull. That I don't feel like I'm being attacked by shooting fire. That I won't combust at any minute. From sheer pain. I have to go about my day like nothing is wrong and I am totally fine. Work. School. Volunteering. No biggie. When the truth is. Most days I want to curl up and shut down.

How could Hopkins dare tell me that come January, I will have to find a local neurologist to manage my care. And in the next sentence say my case is quite complicated. How could you dump me and expect me to manage. No one wants to deal with me. Have I become that patient. Have I become a nuisance. Life fading out of my eyes. Suffocating under the weight of my pain. Of my diseases. How can you tell me six months ago that you will admit me for testing and then not follow up. Tell me that there are no beds. No neurosurgeons on staff. That you are understaffed. And receiving over 300 calls a day. Aren't you the top hospital in the world. Innovative in your field. You say now that you will schedule me for DHA and ICP monitoring. Find out what is causing my chronic pain. But I don't believe you. You only seem to care when people are dying. Is that what you are waiting for. For me to completely fall apart. Puking my guts out. Unable to go to work. To school. Confined to my bed. My couch. You need me to get to the point before you will help me.

But do I even want to be admitted for testing. Shave my head. All to find out there's nothing wrong. That I am just a mess. Can't get my life together. Who will stay with me. Take care of me. I can't be the patient. The needy one. I am the strong one. Dr. Rabbit. My fear of being alone is overwhelming. Of never moving on from this chapter. Never being free. Pain free. I am desperately trying to live a productive life. Unemotional at work. Working my ass off in school. But this pain is overwhelming. It's debilitating. I cannot function. I cannot move. I cannot succeed like this. I am a shadow. Living half a life. With no relief. No break for the future.

You think you see me. But you have no idea.

Friday, December 4, 2015


It's not healthy for me. Don't you get it. Why would you even bother. Have I not made myself clear. I asked you to stop. In the nicest way possible. So please tell me why. Why would you even try. Do you think I wasn't serious. That I don't stick to my word. 

I don't need this. Reading old messages. Emails. Of a previous lifetime. Someone that wasn't me. That I never wanted to be. A trap that I fell into. Judging myself throughout. 

I've moved forward. Onward. I'm trying. But it's hard. All the time. Nothing comes easy. Nothing is simple. Blockades at every turn. The world desperately waiting to see me stumble. Fall flat on my face. Accomplishing nothing. 

I will not give in. Not to the pain. Not to the fear. No person will stand in my way. Not even myself. I will fight. And push through. No matter the cost. Or the loss. You will not be a problem. A tiny fleck of dust I have blown away. You and everyone else. No interference. Not a thing.